Why I Started This Journal
What the diagnosis felt like, what I'm carrying right now, and what happens next.
Read this entry →Neely Nation
I'm Amber. In July 2026 I was diagnosed with cholangiocarcinoma, a rare cancer of the bile ducts. This is where our family tells the story out loud, with hope and honesty.
#NeelyNation
Why This Site Exists
Rare Should Not Mean Invisible
8,000
It Is Rare
That's roughly how many people in the United States are diagnosed with cholangiocarcinoma each year. Most of us had never heard the word until a doctor said it to us out loud.
It Hides
Itching, weight loss, fatigue, yellow skin or eyes. Every early sign has an easier explanation, so it gets explained away. Knowing the warning signs is what shortens the road to answers.
Hope Is Real
Caught early, this cancer can be treated, and the research keeps moving forward. I am living proof that one more question is worth asking. My hope is that you get your answer even sooner than I did.